We Are Rare

  • I am like any other kid!

    Hi! My name is Brock. I am 13 years old, I’ll be 14 in December. I have a rare diagnosis called Hypomelanosis of Ito. I do not speak, but I expre...
  • How our story began

    It is with heavy hearts that Pete and I must share some news. Jordan has recently been diagnosed with a rare degenerative terminal disorder called GAN (Giant Axonal Neuropathy).
  • What does Mothers day mean to you?

    When all of my friends in High School were discussing which programs they were going to take in University and what they wanted to be when they “grew up” I can remember thinking that my 1 and only desire in life was to be mom.